09 December 2011

His Word Lives

 It is an interesting path I am on.  Looking back over all my journal entries after losing my son and now trying to make sense of them.  Trying to think back to that time and all the emotions and thoughts and questions.  Sometimes I will read an entry and sort of be reminded of the Psalms.  Not that I am at ALL comparing my writing to the Psalms, but many of the Psalms seem to start with the author lamenting about their trials... about life and then as you read on, the author comes to the conclusion that still they will praise.  There is something about being in the Word that keeps me praising God.  In all of it.  In the loneliness of it... in the pain of it... the Word lives.  The Word keeps my eyes on Jesus.  It's a great reminder even all these years later.  When I find myself not turning to His Word on a daily basis, I lose focus.  I lose perspective.  
During this time I was struggling deeply with finding joy.  With finding blessing in the blessings.  Everything looked like a potential to suffer even more.  But, one thing held true then and will continue to hold true for eternity and through all the sufferings I'm still being challenged with in this life... God is still God.  God is who He says He is.  His promises are still true for those who trust in Him.  He sees the whole picture and guess what... He wins.  We win.  We will rejoice for all eternity.  That alone will keep me praising Him even when it all just hurts so bad... and it does hurt.  We shouldn't be surprised or dismayed by that.  Remember even Jesus hurt deeply (Matthew 26:38 “Then he said to them, 'My soul is overwhelmed with sorrow to the point of death'")... why would it be any different for you?  Or for me?  It doesn't make you weak.  It makes you human.  It makes you alive.  
6/21/07 

So, I’ve been feeling pretty hopeless these days. Not finding joy in my blessings. I mean, what good is a great home without children to fill it? And I love my son so much. My husband too… but something could happen to them today. Another way for God to bring suffering to me. I mean he promises us suffering upon suffering until we go home. So where is the joy? I know God says who am I to question him, but where can I find joy in my blessings if they will follow with suffering? 

John 16: 20, 22 
“I tell you the truth, you will weep and morn while the world rejoices. You will grieve, but your grief will turn to joy” 

“So with you: Now is your time of grief, but I will see you gain and you will rejoice, and no one will take away your joy.” 

Habakkuk 3: 18 
“Yet I will rejoice in the Lord, I will be joyful in God my Savior.” 

God is God and He knows what he is doing…. I can’t possibly know the reasons for all of this, but I can have hope in knowing God is who he says he is and he is in control in a world that looks so confusing to me. 

Psalm 13: 5 
“But I trust in your unfailing love; my heart rejoices in your salvation.” 

Psalm 51: 12 
“Restore to me the joy of my salvation and grant me a willing spirit, to sustain me.”

03 November 2011

So, it's NOT all about me?

I think sometimes in suffering, we can begin to think it is all about us.  We think all this grief and struggling is happening to ME.  It is MY struggle.  It is MY burden.  It is all about ME!  I remember thinking when Jack died that it was all MY fault even.  God had clearly chosen me to live a life of grief and struggle.  I had lost a boyfriend, a good friend, a young cousin, an aunt, a close family friend, a grandparent and soon 2 grandparents and my father left me at a young age.  I knew loss. I knew it well.  Daniel, my husband, not so much.  He had entered into MY suffering... an innocent bystander to... well... ME.  You see, this hadn't happened to anyone but me in my eyes.  It was MY child after all.  I didn't think about the fact that it was HIS child too.  That my mom and my in-laws lost a grandchild, my brothers lost a nephew, my son lost a brother, my neighbors lost a friend.  We were all suffering and ultimately is wasn't about me and it wasn't even about them.  It was about living in a fallen world.  It was about living for the glory of God, not for my own.  It was about showing the lost Jesus in the midst of my grief.  It was about gaining perseverance for the glory of the Lord.  It was about receiving comfort and then passing it along to others.  It was about hope.  Hope for a life spent with Him!  You see, it really isn't about you.  I don't mean that to be harsh... your pain is real... my pain is real.  God cares deeply about that.  He cares deeply about comforting you... He loves  you.  He will not leave you in your pain.  He is actually going to use it for more... for others... for His glory.  That should make you smile, my sweet friends.  That should give you hope.  So, cling to that hope and pass it on.

6/11/07 

Philippians 2: 13 
“For it is GOD who works in you to will and to act according to his good purpose.” 

So my biggest struggle these days is that I see Jack’s death as “all about me.” I’ve lived the life of struggle, hardship and crisis. Daniel has not so much. But, since he has married me, he has had struggle after struggle and now even the death of his child. I feel sometimes like he has married into this life of struggles. I mean, I know we all struggle in a life of Christ, but his seems like something different to me. I can’t seem to work this one through. I am sure that the Lord has used my struggles and losses to strengthen me for this day and for the days to come. They have brought me perseverance. 

2 Corinthians 4: 8,9 
“We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed.” 

Romans 5: 3-5 
“Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us. 

2 Peter 1: 5,6 
“For this very reason, make every effort to add to your faith goodness; and to goodness, knowledge; and to knowledge, self-control; and to self-control, perseverance; and to perseverance, godliness, and to godliness, brotherly kindness; and to brotherly kindness, love.” 

So, through my struggles, I have perseverance for this day and for my husband?

14 October 2011

Ummm... that's uncomfortable....

Some days scripture was all I could write.  All I could do was run to His arms, opening and beckoning me to His word... I think that is exactly where He wants us all.  So, below you will find scripture after scripture that spoke to me during this time.  They were a balm to my soul.  I pray you would read each one and be comforted.  
Around this time, I started to realize that people were moving on and talking about my sweet Jack was starting to become uncomfortable.  Not for me, but for those around me.  I thought, really??  I mean... really?  It's a shame that we shy away from talking... talking about grief.  Talking about our loss.  Tomorrow is infant death awareness... did you even know there was such a day?  I read this quote and it spoke straight to my heart.  It would have back at this time in my journey, but even now, when I want to talk, this quote speaks to my heart.  Elizabeth Edwards, "If you know someone who has lost a child, and you're afraid to mention them because you think you might make them sad by reminding them that they died--you're not reminding them. They didn't forget they died. What you're reminding them of is that you remembered that they lived, and...that is a great gift."  You see, it was becoming uncomfortable for those around me, yet I still had to go through all the milestones of loosing my son and yet, now I couldn't speak of it, it seemed.  When I saw my son's name on his head stone for the first time, I broke.  I piece of me broke.  There it was for all to see... my baby's name on the ground forever in memorial to him.  I wanted to talk that day.  Who can I talk to on his 5th birthday?  Who can I talk to on the day he should start kindergarden?  Who can I talk to each time I think of my little man?  Will you be there to let someone talk without making it uncomfortable?  Will you be a safe place for someone?  Will you be a comfort from Jesus to someone who needs you?
5/15/07

Psalm 127: 3 “Behold, children are a heritage from the Lord, the fruit of the womb is His reward.

5/24/07

Romans 8: 1 “Therefore there is now NO condemnation for those who are in Christ Jesus, because through Christ Jesus the law of the Spirit of life set me free from the law of sin and death.”

Romans 8: 6 “The mind of sinful man is death, but the mind controlled by the Spirit is life and peace; the sinful mind is hostile to God.”

Romans 8: 15 “For you did not receive a spirit that makes you a slave again to fear, but you received the spirit of son- ship. And by him we cry, “Abba, Father.”

Romans 8: 24,25 “For in this hope we were saved. But hope that is seen is no hope at all. Who hopes for what he already has? But if we hope for what we do not yet have, we wait patiently.”

5/29/07 
Yesterday we got to go see Jack’s head stone for the first time…. Memorial Day. How fitting. It was so hard to see my little boy’s name there. I miss him so much!
It seems to me that people are getting to a place where they don’t want me to talk about Jack as much, but some will always let me. I miss my little boy! 
Ecclesiastes 11: 5 “As you do not know the path of the wind, or how the body is formed in a mother’s womb, so you cannot understand the work of God, the maker of all things."
Jeremiah 29: 11 “For I know the plans I have for you, says the Lord, plans for good and not evil, to give you a future and a hope."
Psalm 46:1 “God is our refuge and strength, an ever-present help in trouble.” 
Psalm 41: 10 “So do not fear, for I am with you; do not be dismayed for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand." 
Psalm 118: 25-29 “You are my God, and I will give you thinks; you are my God and I will exalt you. Give thanks to the Lord, for he is good; his love endures forever.” 
Psalm 55; 22 “Cast your cares on the Lord and he will sustain you; he will never let the righteous fall.” 
Psalm 56: 3-4, 8, 11“When I am afraid, I will trust in you. In God, whose work I praise, in God I trust; I will not be afraid. What can mortal man do to me?"  
“Record my lament; list my tears on your scroll- are they not in your record?”
“In God I trust; I will not be afraid. What can man do to me?”

09 October 2011

Oh, the Holidays...

Let's just say it aloud together because we all know it's true...holidays sometimes just plain suck for the grieving (yes, I meant to use that word, sorry!).  I remember my first round of them after losing Jack.  Each one brought the pain searing anew into my heart.  At the holidays we gather as family... celebrating Christ and one another.  Those who are missing are magnified, it seems.  But, praise be to the one who will one day make all things new and right.  His Word holds so much hope and joy for us.  
Mother's day was especially hard (as one can imagine!), but I was so very thankful for a church who recognized the mothers who had lost children.  What a sweet time.  A time to not have to explain the tears.  Not have to explain the heaviness of heart.  To not have to apologize.  To sit in a room with people and not have to be alone.  The pain doesn't get easier, but I felt such joy when 3 years later I was given the opportunity to help in that service and give comfort to other women just as God had given me comfort.  I pray that through this blog and through relationships I can honor God by doing just what He asks of me in 2 Corinthians.  To comfort others through the comfort I have received.  I pray you do the same as the holidays draw near.  Sit with someone who is grieving and let them grieve.  Let them talk... or not talk.  Let them feel.  Let them cry... or laugh.  Just let them be right where they are.  Just be there with them... let them be comforted.
5/14/07 

So, this past weekend was great and yet very painful. Friday night the church had a service for women who had lost children through miscarriage, abortion, or early infant death. It was a beautiful service and there were far too many women there.

Isaiah 61: 1-3 
“The spirit of the Sovereign Lord is on me, because the Lord has anointed me to preach good news to the poor. He has sent me to bind up the brokenhearted, to proclaim freedom for the captives and release from darkness for the prisoners, to proclaim the year of the Lord’s favor and the day of vengeance of our God, to comfort all who mourn and provide for those who grieve in Zion- to bestow on them a crown of beauty instead of ashes, the oil of gladness instead of mourning, and a garment of praise instead of a spirit of despair. They will be called oaks of righteousness, a planting of the Lord for the display of his splendor.” 

2 Corinthians 1: 3-5 
“Praise be to God and Father of our Lord Jesus Christ, the Father of Compassion and the God of all comfort who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God. For just as the sufferings of Christ flow over into our lives, so also through Christ our comfort overflows.” 

Sunday was Mother’s Day. My first holiday and 1st Mother’s Day since Jack died. It hurt my heart. We had a baby dedication during the church service. It broke my heart to not have Jack there seeing all those little babies… it wasn’t about me and I was happy for all those parents, but my heart broke to not have Jack in my arms. When will the mourning end? My guess is not this side of heaven.

28 September 2011

How Many, you say?

Romans 1: 11-12 "I long to see you so that I may impart to you some spiritual gift to make you strong— that is, that you and I may be mutually encouraged by each other’s faith."

How many kids do you have?  Seems like an easy answer for most of us.  You know your children.  When someone asks you that question, they all come to your mind by name.  You wouldn't dare say 2 when you know you have 3.  It would be like denying a part of yourself.  It would not honor all of your children.  It would not honor all that Christ has graciously given to you.  Seems reasonable to say 3.  But what happens when one dies?  What do you say?  What do you say when your soul cries out 3, but you only have 2 standing there?  Do you say 2 and deny part of yourself... deny all the blessings God has given to you?  Do you say 2 because to say 3 might make someone uncomfortable because you know they will ask their ages and you then have to explain that one lives in heaven and now things are uncomfortable?  What do you say?  I think this is a question each mom, dad, grandparent, aunt, uncle, or cousin has to answer for themselves.  I'm not sure there is a right answer, but my soul shouts 3.  Making others comfortable in a fallen world where pain and suffering and sin abound is not my goal.  My goal is to be true to God, true to myself, and to honor all that God has given me.  Honestly sometimes I do say 2.  Each time I do, I feel this subtle prick of conviction.  I dread that question and yet God has blessed my answer of 3 so many times.  Women have thanked me, my husband has thanked me, grieving people thank me... it seems to give them permission to declare their journey as well.  So, I stand here to tell you... I have 3 beautiful children.  Luke, Jack and Ella.  Luke is 6, Ella is 3 and Jack is living in the care of his heavenly father.  How many kids do you have?

5/10/07
Last Tuesday I was at a store with Luke. Someone asked me if I had any other children. How am I supposed to answer that question for the rest of my life. If I say no, I would feel like I’m lying and not acknowledging Jack. If I say yes and explain that he died, people will feel like they have to come up with something to say and it changes everyone’s mood. Why do people always feel like they have to say something?
 

17 August 2011

By His Wounds

Isaiah 53:5 "But he was pierced for our transgressions, he was crushed for our iniquities; the punishment that brought us peace was on him, and by his wounds we are healed."

Moving into the second month as a "mother who has lost a child," I began to think about life still moving.  Not moving on... but moving none the less.  But, I also realized that my potential for suffering was not over.  I had not checked some preverbal  box that would keep me from suffering ever again.  Not only would it not keep me from future suffering, but it wouldn't even keep me from this type of suffering.  I hadn't check the "lost a child" box only to not have it happen again.  That is scary.  That is heart stopping, heart wrenching, soul searching kind of scary.  So, what do we do with that?  What do we do in the middle of suffering knowing that it may not end here?  We rely on God.  We acknowledge our dependency on Him.  I was never closer to God than in the middle of my worst pain.  I clung to Him in ways I never had before.  I never knew how dependent on Him I really was until that little boy let out his last breath.  Oh, I needed a Savior as much before this as I did in the middle of this, but I didn't see it in the same way.  What a sweet gift.  What a sweet gift the Savior of the world would give to me.  A closeness and a dependency on Him that I had never had before.  Suffering gives us an opportunity to fully acknowledge our need for Him.  That is a sweet thing, my friends, for He is a good God.  He is the only God that can work it all for our good and His glory.  He is the giver of life... the giver of our future. He is a compassionate God that wants to heal your wounds.  We live in a fallen world, my friends, and until that day where we will meet our God in heaven, we will suffer... thanks be to Him, my rock and my healer.
5/8/07

Yesterday I met with Maria from Steven’s Ministry. It was great to be with someone who not only understood what I was going through, but who had also come out on the other side and has had other children. She lost her first son 20 years ago. She adopted one child and then birthed one 3 years after that…. 5 years after losing her baby. She had 10 miscarriages in between babies. I can’t imagine! It scares me that Jack may not be the only child I lose. But, I must stay here in the moment and not get discouraged about what might happen in the future. I think Satan loves to keep us in the past or in the future and away from the present and/or eternity. I must finish morning Jack and dealing with his loss.

09 August 2011

Hope

Hope is a funny thing.  When hope abounds, one feels the breath of life.  When hope is lost, despair will set in.  So, what do we say to the one with no hope?  The one with no hope and is facing despair... who is suffering... who needs hope?  I don't know how people who have no hope recover from such loss.  I'm not sure they ever do.  I met a woman at Jack's grave once... I still remember her standing at her daughter's tiny grave.  Overcome with grief.  She looked to me standing over my son's tiny grave with a swollen belly... a sign of new life in the midst of loss of life.  I can still see the questions in her eyes.  How did you move on?  How can you have another baby?  How can you stand there with hope?  That sweet woman had no hope.  She didn't know my Savior.  She didn't know the Father who held her precious daughter safe in his arms.  She asked so many questions... sweet woman.  But, seeing her lack of hope, I started with my Jesus.  The Jesus she needed to cling to.  Without him, there is nothing... no hope... no life... no refuge.  You see, he came to seek and to save the lost.  That means he came to save me and to save you.  We are hopeless and lost without him.  We need a Savior to give us a new life and to give us hope.  Hope of a life with him.  Hope of a life where he knows every small detail and has worked it out perfectly for our good and for his glory.  Wow!!  That is MY God!  

5/7/07 
Romans 4: 18
“Against all hope, Abraham in hope believed and so became the father of many nations, just as it had been said to him, ‘So shall your offspring be.’” 
Abraham had no reason to have hope (he was 100 years old and Sarah’s womb was “dead”), but yet he hoped in God’s promise to Him. When it looks like I have no hope, I need to hope in God’s promises and he will bless! 
Romans 5:5
“And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us.” 
So, we can have hope because of God’s great love that He has POURED out onto our heart!
It is by that immense love that I must live and hope. My hope is in God! In His eternal glory.

01 August 2011

God created me for this

The days after having a baby are quite amazing.  I mean, the nurturing that happens in the months after having a baby are indescribable.  You nurse, you feed, you comfort, you rock, you cuddle, you hold, you stare, you love.  You just do... it is how God created us moms.  I know not EVERY mother does that... some have some serious battles to fight after having children, but I believe that to be an exception... we were originally designed to do all of these things.  It is written on our DNA.  It is a part of God's perfect design for us.  Our hormones take over and there isn't a whole lot we can do about it.  So, that means it is still true of the mama who doesn't get to keep her baby too.  My body still ached to nurse, feed, comfort, rock, cuddle, hold, stare and love.  I needed it like I needed air.  I remember holding my sweet nephew at Jack's funeral who was only a couple of months old.  They almost had to pry him out of my arms.  I couldn't let go.  I didn't want to let go.  It's a hard feeling to describe, but it made waiting to have another baby devastating to me.  Another sign of things not being the way they were "supposed" to be.  Another sign of a fallen world.  Another need for hope.  For grace.  For a Savior.  Without my Savior I had no hope, no grace, no reason to press on.  I clung to my older son during those days.  Sweet boy... he let me hold him for as long as I needed to.  It seemed he knew I needed it as he isn't the cuddling type.  God gives us just what we need.
4/30/07 
Dr. Menard told me I should wait 6 months to physically heal before I conceive again. She suggested further that I wait an extra 3 months for some more emotional healing. I’m not sure I need that much time for emotional healing, but I was secretly devastated that she wanted me to wait 6 months. Doesn't she see that I need another baby.  I don't want a replacement... no one can replace Jack, but I need to see life happen.  I guess I didn’t realize how much I wanted another baby until I was told to wait. My body yearns to have another baby in my womb. God is in control.

18 July 2011

Marriage and Suffering

I wanted to break up the next journal entry as it dealt with several issues.  The first one being my marriage during this time.  It definitely went through some ups and downs as every marriage will when put to the test.  Some days were better than others, but we tried really hard to remain aware of each other and of what we were each going through.  Daniel knew he could call me wherever I was and I would come home if he needed me... I could do the same.  So many marriages end in divorce when going through something so big.  I didn't want to become part of that statistic.  To be honest, at first I couldn't even understand that statistic.  I felt like this little boy and the experience of his death were such a big part of me that no one would understand me more than my husband.  I couldn't imagine going through this life with anyone who hadn't experienced this with me.  Then time went by.  And I realized something.  My grief was too heavy.  Daniel's grief was too heavy.  I couldn't carry mine and I certainly couldn't carry his.  I had to let Jesus carry mine.  Daniel had to let Jesus carry his.  If we tried to put our grief on each other we would crush each other.  Only Jesus can carry that weight.  Talk... yes.  Share... you must.  Cry together... certainly.  Call on each other... of course.  Carry the weight of your grief and burden... only Jesus.  Only He can stand it.    I love the promise in Psalm 68:19 "Praise be to the Lord, to God our Savior, who daily bears our burdens."  To be honest, I don't know what that looks like all the time, but maybe some days it just starts with an honest conversation with God.  Telling him your heart just plain hurts.  Sitting in his lap and meditating on his promises.  Sometimes that's all we have.  Some days it will be enough and some days it won't feel like enough, but that's when your head has to convince your heart, because our hearts can't be trusted.  Jeremiah 17: 9 The heart is deceitful above all things and beyond cure. Who can understand it?"

4/30/07 
The days are getting long. The dust has settled and I am still sad. Daniel is suffering too. Ever since my post partum appointment he has been short, inpatient. Very unlike my sweet husband. I hate to see him suffer. I read the other day that 70% of marriages end in divorce within 5 years fo the death of a child. That’s scary, but I can see why. I feel like Daniel and I have done so well up until now, but we are gradually moving apart. We both need to deal with whatever is going on inside before Satan gets a stronghold in our lives and in our marriage. I don’t fear divorce, but Satan would be just as happy to see us overcome with bitterness and separation.
 Lord, help me be the wife you have called me to be.  Heal our hearts, O Lord.  Draw us to yourself.  Let us not lean on our own understanding, but on you alone.

06 July 2011

Anger?

James 1: 19-21 "My dear brothers and sisters, take note of this: Everyone should be quick to listen, slow to speak and slow to become angry, because human anger does not produce the righteousness that God desires. Therefore, get rid of all moral filth and the evil that is so prevalent and humbly accept the word planted in you, which can save you."

I remember muddling through so many things in those few months after losing Jack.  I remember trying to just hold it together.  Sometimes I couldn't think well enough to prepare lunch, but there were some things I held onto with an iron fist.  Things like anger... or I guess more accurately, not having anger.  I didn't want to go there.  I didn't want anger to take a hold of my heart and grow bitterness.  It was important to me... a mission, if you will.  I felt like one way to handle my bitterness was to seek out other women who had gotten through a similar situation and to not be around women (for that time) who were currently going through the same thing... otherwise known as "support groups."  Now, let me say this... I was connected with a women who was mentoring/counseling me through this time.  We met weekly and it was VERY beneficial.  She had been through a similar situation 20 years prior and it was SO good for me.  She helped me work through a lot, so I'm not anti-support or anti-counseling, just FOR ME, it needed to look different than a support group.
4/27/07 
Many people have suggested that I go to a support group with other grieving people; people who have lost their children. I am sure this is helpful for some people. I wish it could be for me too. The thought of going to spend time in a room full of people who are suffering like me makes me… paralyzed with fear. A part of me really doesn’t want the burden of what others are going through on me right now. I don’t want to hear about other’s guilt, anger, and fear. There are some stages that people go through that I would just rather skip. Like anger, I just want to skip the anger stage. I don’t have anger now and I don’t want to go to a group where others might be going through anger and I get ideas into my head and say, “oh, I didn’t think of that, now I’m angry too.” Right now I’m praying that God would protect me from the angry part. When I’m angry, I sin. Maybe others can be angry and not sin, but not me. I become irritable, irrational, short- tempered, and so forth. So, I really don’t want to go there. I know it is a normal part of grieving and I recommend people go through that if that is what they are feeling. God can handle our anger, but so far God has guarded my heart from that… and I think that is okay. 
I also realized yesterday that I am afraid to be alone with my husband. His grief scares me. It is like the whole support group thing. I just don’t feel strong enough for him to dump his grief onto me and I feel he can’t handle the same from me. So we can grow apart because of this, but that is unacceptable to me also. We need to stay connected more now than ever. Jake suggested that we go somewhere to have fun. To build some fun memories together. I think this is wise. We need to have some time together and just have fun. We don’t have to wallow in our grief together when we are alone. 
I think I want to be apart of a group that has come out on the other side. Some women who can tell me how they survived this. How they were able to do life again and maybe even go on to have other children. Women like Mary Hicks. That’s what I need. Older (as in been going through this longer), wiser women who can counsel me.   
Father, I pray you would grant that to me now and that one day you would allow me to be that for another. 
Titus 2: 4,5 
“Then they (older women) can train the younger women to love their husbands and children, to be self-controlled and pure, to be busy at home, to be kind, and to be subject to their husbands, so that no one will malign the word of God.” 

30 June 2011

Did I pray hard enough?

2 Tim 3:16-17 "All Scripture is God-breathed and is useful for teaching, rebuking, correcting and training in righteousness, so that the servant of God may be thoroughly equipped for every good work.

I am not a bible scholar nor do I play one on T.V.  I'm a simple girl trying to work through some HARD stuff.  I don't pretend to know all the answers (well... okay, maybe I do sometimes).  All I know is that the word is all I need to understand who God is.  He has written down all I need to know about life in Him, so it is there that I turn when trying to work through all this "stuff."  It is there where He will reveal himself to me.  So, that's where I turned when trying to find out another "what if."

4/23/07
So what does that mean if God can change His mind with our earnest prayer? What does that mean about Jack? Does it mean that had I or Daniel or even someone else prayed harder, we could have saved Jack?
Well, first I have to look at God’s character…. God is good, just, loving, and merciful, He does not hold our sins against us anymore when we live covered by the blood of Christ. So, would God use my lack of prayer against my precious Jack or me?
I also have to look back at the times God changed His mind in the past. In Exodus He changed His mind in the severity of His punishment on His people because of Moses’ prayer and to fulfill His promises to His people. God will always keep His promises and He does not promise me that He will not take any of my children or that I will not suffer… quite the contrary. 
(Numbers 14: 11-23; 2 Chronicles 29: 3-10, 36; Jonah 3: 1-10)
So, God’s mind changes as a response to changed conditions? God will never answer a prayer with yes that is outside of His will. So, our prayers must conform to His will and must be within the character of God.
So, what does Jack’s death say about the character of God? Romans 8: 28
How can Jack’s death benefit me? Well, it isn’t just about me. Remember Isaiah 57: 1,2 God saved JACK from “evil days ahead.” As his mother should I not rejoice in that? I mourn because I loved Jack and I miss Jack- this is okay. Even Jesus mourns. John 11:35 He wept for their loss. AND Jack’s death HAS benefited me… I have grown in my spiritual walk, my prayer and my understanding of prayer, I have seen others point their eyes to the cross, and I know there are many more blessings to come. But, I still weep for my baby and that is okay.
So, I am convinced that the death of my son was within the perfect will of God and therefore I could not have changed that.   Further more what does it say about what is MOST important to me if I would ask God or expect God to act outside of His perfect will? Is what glorifies God most the most important thing to me?  That is a hard question for a woman mourning the death of her son... very hard.

27 June 2011

My Simple Prayer

Some days all I could offer God was a simple prayer.  Some days I saw my state and knew I had nothing else to offer.  I knew I wasn't giving God all of me.  I knew I was not dealing in grace and love and compassion.  I knew that all I could do was take it to the Father, let Him cleanse me and do better tomorrow.  In all of this, I don't want anyone to see a woman who each and every day found victory.  Who each and every day graciously turned my eyes to His Word and was healed.  Some days I couldn't. Some days I wanted to just sit in the pain.  I found comfort in my pain.  I know that sounds strange, but maybe it doesn't.  I think we all have those days where we think it would just be easier to stay this way.  To be forever sad.  To be forever alone.  To be forever attached to the pain.  If the pain left, what would I have left of my sweet boy?  If the pain was gone, would I start to forget?  In those days all I knew how to do was to offer up repentance and thanksgiving to God.  That may sound counterintuitive, but when all I want to see is pain, it's sometimes good to give thanks.  Force myself to see all God had done... was doing.  It's a simple prayer.  It was all I had that day.  But sometimes that's enough.  I think God was blessed by the simple prayer of a hurting mother.  Give Him what you have.  He requires nothing less... nothing more.  It reminds me of the call of Jesus in John 7:37 "On the last and greatest day of the festival, Jesus stood and said in a loud voice, “Let anyone who is thirsty come to me and drink."  Come. Just come.  That's what He asks.  

4/20/07 
Lord please forgive me for not always turning to you. For not having patience and grace for my husband and my son. For not always dealing in compassion with others. For doubting your sovereign plan for my life. For feeling like I deserve more. 
Thank you for your everlasting grace and joy. Thank you for not giving up on me. Thank you for taking care of Jack and for lending him to me for 33 weeks. Thank you for Daniel and Luke.

20 June 2011

The "What Ifs"

I think it is natural for us to think about the what ifs when something tragic happens.  What if we had prayed more, what if we had done more, what if we had believed more.  I still struggle with those questions sometimes.  I think that when I do struggle with those questions, my eyes are turned away from God and turned towards myself.  I start thinking I know best.  I start thinking my plan is better.  I starting thinking about me... and just me... my world... my future... my comfort.  But what about God's plan?  I had a women in my own church tell me that all I needed to do was pray hard enough and surround myself with people who believed my child would be okay and he would.  I know she meant to bless me with her words, but honestly, those words haunt me sometimes.  But what does His word tell us?  That is where we will find our comfort, our hope, our understanding.  Will you turn there when you struggle with the "what ifs"?
4/19/07 
So, lately, Daniel has been thinking (and me too, to tell you the truth) that maybe there had been something we could have done to save our little boy. Maybe if we had been more aggressive in our care for Jack, he would have survived. But could this be true? I mean, maybe he would have died sooner? But then what about… 
Ephesians 2: 10 “For we are God’s workmanship, created in Christ Jesus to do good works, which God prepared in advance for us to do.” 
If He prepared in advance our good works then Jack couldn’t have died before he had done all the good works God prepared for him. 
Also, what about … 
Acts 17: 26 “From one man he made every nation of me, that they should inhabit the whole earth; and he determined the times set for them and the exact places where they should live.” 
So, this has to be true for Jack too, right? I mean God determined where and when and for how long he would live. God determined when he would live and die and we could not change or thwart His plan. 
Isaiah 57: 1,2 (TLB) “The good men perish; the godly die before their time…. No one seems to realize that God is taking them away from evil days ahead. For the godly who die shall rest in peace.” 
Psalm 116: 15 “Precious in the sight of the Lord is the death of His saints.” 
Psalm 139: 16 “… your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be.”
I love Job's (a man all too familiar with suffering) response in Job 42: 1-3 "Then Job replied to the LORD:"I know that you can do all things; no purpose of yours can be thwarted. You asked, ‘Who is this that obscures my plans without knowledge?’ Surely I spoke of things I did not understand, things too wonderful for me to know."

06 June 2011

Define Rescue

I often prayed for rescue before my son died.  I didn't want the pain, the trial, the road set before me.  I wanted to be rescued.  And by rescued, I meant I wanted God to save my child.  To let me raise my son.  I knew God could still give me my son if He really wanted to...even after the heart monitors were turned off.  I asked Him to because I knew He could.  But, when my son did die and didn't come back, did that mean God answered no?  Or could it mean that God still did rescue me... that God was still rescuing me... that His sort of rescue for me in this situation looked different than I could have anticipated?


4/17/07
James 1: 2,3 “Consider it pure joy, my brothers, whenever you face trials of many kinds because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything.”
I often in these last few months have asked God to rescue me. To rescue me out of my situation. God’s answer has been to rescue me with his grace and empowerment to get through my situation and to lead me right where I am. I will not be lead out, but through so that I might develop perseverance. I lack less now at this moment than I did last year, month, week, and even moments ago.

John 15:5 “I am the vine; you are the branches. If a man remains in me and I in him, he will bear much fruit; APART FROM ME YOU CAN DO NOTHING.” (emphasis mine)

2 Corinthians 12: 8-10 “Three times I pleaded with the Lord to take it away from me. But he said to me, ‘My grace is sufficient for you, for my power is made PERFECT in weakness.’ Therefore, I will boast all the more gladly about my weakness, so that Christ’s power may REST on me. That is why, for Christ’s sake, I delight in weakness, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.”(emphasis mine)

I take delight, not for me or for what I am going through, but for Christ – that is when His power is made perfect. I thank Him for what He is doing for His glory. 
2Peter 2: 9a “…if this is so, then the Lord knows how to RESCUE godly men from trials.”

God does no abandon me when, in His sovereign wisdom and grace, He decides to leave me in a situation. Sometimes I may feel alone and in despair, but I only need to look to His Word to hear, know, and truly SEE His truth.

--forgive me for not always living in the empowerment of your grace. Lord, help me give glory and thanks for your sake through Jack’s death.

31 May 2011

Letting Go of Dreams

That women's retreat rocked my world on many different levels.  My dreams of what my family was going to be... the mother I would be, had just been crushed and now I was being told some very hard things.  Things that seem as if they would be easier to hear when the wound has yet to come or has at least begun to scab over.  My wound was still wide open.  I was feeling these things at full force.  God was meeting me right where I was... in the midst of pain and giving me the truth of what His Word says about things we hope we will never have to face.  The truths that we gloss over when things aren't so bad.  The truths that we can tend to take for granted.  I had to search the Word and instead of just read it, I had to let the truths seep into my soul, take root, grow, and become my very life line.  Would you be willing to do that today?  Let His Word reach your inmost heart and change you, mold you, heal you?  The truth I found in 2 Peter told me that I had everything I needed for life AND for godliness.  Not just what I needed to survive, but to have godliness too.  Wow!  What a promise we have.  What does it mean about how we will suffer?  Will we just get through or will we have godliness?  Will we simply survive, or does God have something more than that for us?  My friends, I believe God has something much more for us!  But, first we must be willing to let go of OUR dreams.
4/16/07

2 peter 1: 3 “His divine power has given us everything we need for life and godliness through our knowledge of him who called us by his own glory and goodness.”

If this is true, which I believe it is, then I have all I need to get through trials of all kinds. Even the trial of Jack’s death. God is not finished with me. He has more work to do. He has not finished pouring out the blessings that will come from Jack’s death. I have so much more to learn about God’s dreams for my life. BUT first I must learn to let go of my dreams and trust that God’s dreams for my life are not only bigger but also better than mine.

--God, teach me your ways. Lead me into a greater understanding of you. Use my holy imagination to SEE you better.

Job 42: 5 “My ears had heard of you, but now my eyes have SEEN you .”

Lord, please also work in Daniel and Luke’s lives- replenish them. Help them see what you have done and will do through Jack’s life. Give them perseverance!

I praise you for who you are… for your grace and abundance of compassion and love for me. Thank you for not giving up on me and, most of all, for dieing rather than being without me!

1 month today

23 May 2011

The first Step Towards God

My church was having a women's retreat about 4 weeks after Jack had died.  It was on fear (I know... how perfect, right?).  I wasn't planning on going, but one day the man who did finances for my church was mowing my lawn with his son (okay... pause there... let's talk about how awesome our church was.  I couldn't have cared less about my lawn, but here was this man taking care of us in ways we never would have thought to ask and he was showing his son to do the same.  Amazing.) and he asked me if I was going.  Umm... no.  He gently encouraged me to go squashing all of my excuses.  No money... here's a scholarship, sign up is over... he could get me in, I couldn't leave my husband... they would hang out with him.  Okay, I guess I'm going.  I thank God he did that.  I mean, come on, fear... really... I definitely needed to hear on that subject.  I was so blessed by that retreat and I won't forget how it ministered to my heart at just the right time.  I could have stayed home and no one would have blamed me, but God had something to say to me and I needed to be away in the mountains to hear from Him.  I needed to be available and fully present.  After that very first talk I grabbed the notes from the speaker and I began to write.  I couldn't stop and I wouldn't stop for about 6 months.  Here's my first entry.
4/15/07 
John Piper concerning Romans 8:28: 
"Nothing will ever enter your experience as God’s child that, by God’s sovereign grace, will not turn out to benefit you. You must believe this or you will not thrive, or perhaps even survive as a Christian, in the pressures and temptations of modern life…. God is taking every setback and every discouragement and every pleasure and every pain and striping it of its destructive power and making it work for the enlargement of MY JOY in God."
Mindy Williams: 
"Poor in spirit really does mean that you are poverty stricken, destitute on your own. Dependency can feel like total helplessness and, with respect to your need for God, you are. You are helpless on your own. Weak feels very vulnerable. I am in need of rescue—help me God! If you don’t show up, I’m lost!"
It is ok for me to feel vulnerable, weak, helpless, and on the edge. Without God I will fall victim to what Satan wants—me to be lost. With God I am strong and hopeful. I am not lost. God has found me and I have found Him. He will make me strong, able and stable. 
God would rather die than be without me!! 
Romans 8: 38 
“For I am convinced that neither death nor life, neither angels or demons, neither the present nor the future, nor any powers, neither height nor depth, not anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.”

16 May 2011

Comfort Each Other

1 Thessalonians 5: 11 "Therefore encourage one another and build each other up, just as in fact you are doing."

Have you ever been to the funeral of a child? Well, I hadn't and I certainly didn't know how to plan one. It isn't in any of the parenting books. All I knew is that I wanted everyone who loved us there. I wanted to see their faces and hug their necks. I know all grieving mothers don't feel that way, but I can't explain the desperation in me to see my loved ones... to hold them... to cry with them... to share my son's little life with them. I wanted to hear my pastor speak truth to the people who would come. To tell them (and me) that my son was being held in the arms of his Savior, King, Father, Abba. I wanted to hear my husband sing "Turn Your Eyes Upon Jesus" to everyone there so they could share that sweet memory with us. I wanted everyone to know that I knew exactly what was happening and yet I still chose to look to God and receive the hope He was so graciously extending to me. And that is exactly what we did.

I can't tell you everyone that was there or what exactly the pastor said, but what I can tell you is that being surrounded by that much love was like a soothing balm to my soul.  The doctor that delivered Jack was there, my ultrasound tech who we developed such a sweet relationship with and who gave us most of the pictures we have of our son... sneeking more to us than our allotted few was there, the friend who had lost a child and then gone on to have another was there, the friends that prayed over my swollen belly were there, the family that supported us and loved our little boy was there, the pastors who carried us when our legs couldn't were there... they were all there.  They choose to love us when it wasn't pretty.... like even when I had the ugly cry going on.  They choose to sit with us... to be with us.  There isn't anything more beautiful than the church of God being God to us when we need it so desperately.  So, here's my encouragement... be there.  Show up.  Jesus showed up on the day we needed Him most... the day of our salvation, so be there for each other.  Choose love.  Choose comfort.  Choose the hard path.  You will bless and be blessed.  You don't have to know what to say... there isn't anything you can say to make the pain stop or even to lessen the pain.  That's God's job.  Your job is to show up.

Three years before I lost Jack, God told me to write.  I know... "God told me..." what does that even mean?  It means I heard in my soul a calling.  I can't really describe it any other way.  But, what I do know is that I'm not a writer.  I don't like to write.  I can't write.  I don't even journal.  But, God told me to write and so I said ok... "about what, God"?  Silence.  Silence for 3 years.  That silence turned into an resounding compulsion to write about four weeks after Jack died.  I couldn't NOT write.  I had to write.  My soul and mind couldn't do anything but write.  In the following posts I will share what God laid on my heart.  

03 May 2011

The Day My Son Received His Inheritance

Matthew 11:28-30 "Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light."

We had one ultrasound after the shunt was placed that showed a slow re-accumulation of fluid. Approximately one week later I had to give birth to my sweet, second child. Jack Michael. He was beautiful and BIG for 33 weeks. He looked healthy to me. Nothing on the outside indicated a problem on the inside. It makes me remember how I can be so unhealthy on the inside while looking fine on the outside too. My faith was about to be put to a serious test and I wasn't sure I would pass... how exactly was I doing on the inside? I'm not sure I did pass day to day, but God never left me. I never felt so overwhelmed by people who loved us. My sister in law woke up my eldest son at midnight to bring him to me because she knew how much I needed him right then. My pastor sat in my hospital room not but a few short hours later praying for me and my family, talking to us... just being there. Family, friends, loved ones came to us. Jesus came to us. He meet us right there in that hospital room. As we sang "Turn Your Eyes Upon Jesus" to our son as he went to receive his inheritance with his Father, Jesus was with us. Weeping with us. We sometimes think if we are strong enough in our faith or strong enough in our prayers that weeping won't come, that the pain won't come, that the chest crunching grief won't come, but as the wise words of a dear friend show us, "prayer and knowledge of the scripture is not a spiritual anesthetic." Jesus wept, why would we think there was anything less for those of us conformed into His image? Jesus wept deeply in the garden of Gethsemane and He knew the good that was about to come... salvation of the world. Friends, don't be surprised by your grief (1Peter 1: 6-7 "In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that the proven genuineness of your faith—of greater worth than gold, which perishes even though refined by fire—may result in praise, glory and honor when Jesus Christ is revealed"). Take to the one who can comfort you. He wants to comfort you (Matthew 5:4 "Blessed are those who mourn, for they will be comforted.." It's a promise.).

Final Update

As you know, we have been going twice each week for ultrasounds. On Thursday the 15th, our ultrasound revealed that Jeep's ascites was returning, so we were sent to the hospital to deliver.

Jack Michael Pendergrass was delivered via cesarean section at 8:31 AM on Friday, March 16th, 2007. He was 19 1/4" long and weighed 5 lbs 9 oz.

The Neonatal Intensive Care Unit doctors (neonatologists) worked on Jack for over 15 hours to try and establish a successful oxygen transfer in his lungs, but his hypoplastic lungs and pleural effusion had taken a great toll on him, and his tiny lungs were unable to support him. Jack was taken to be with Jesus at 11:59 PM that night. Carrie and I were able to sit with him some, and hold him some before his heart stopped, and grieve his loss greatly. But we are hopeful for the day that we see him again, as Jesus confirms in John 11, and we also know that " in all things God works for the good of those who love him, who have been called according to his purpose" (Romans 8:28).


We feel greatly blessed and privileged to be the parents of Jack, and to have brought into this world a life that will last forever in the presence of the Almighty God.


 
John 11:21-27
"Lord," Martha said to Jesus, "if you had been here, my brother would not have died. But I know that even now God will give you whatever you ask."

Jesus said to her, "Your brother will rise again."

Martha answered, "I know he will rise again in the resurrection at the last day."

Jesus said to her, "I am the resurrection and the life. He who believes in me will live, even though he dies; and whoever lives and believes in me will never die. Do you believe this?"

"Yes, Lord," she told him, "I believe that you are the Christ, the Son of God, who was to come into the world."

Matthew 11:28-30
"Come to me, all you who are weary and burdened, and I will give you rest.Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light."

26 April 2011

The Rough Road

Psalm 56:3-4,8,11 "When I am afraid, I will trust in you.  In God, whose word I praise, in God I trust; I will not be afraid.  What can mortal man do to me?  Record my lament; list my tears on your scroll —are they not in your record? in God I trust; I will not be afraid. What can man do to me?"

I'm going to skip over updates 9 and 10 because in those days we didn't really find out anything new.  Jeep continued to do fairly well and his prognosis was much of the same... he's growing, he's fighting, he should do well.  We visited the neonatal unit at UNC Chapel Hill and those doctors told us the same thing.  Things look positive and we think your baby will be well, but will need some time in the NICU.  If you'd like to look at those updates in their entirety you can view them here and here.  

All the scary stuff started to happen around 31 weeks gestation.  Our baby had developed the dreaded Hydrops.  Why "dreaded"?  Well, according to the research, 95% of babies with Hydrops do not survive.  It was the one word I didn't want to hear.  This did not mean that God's plan had changed.  It did mean that our plans, hopes and dreams were on the line.  My heart started to waver.  I vividly remember sitting at the kitchen table and telling my sweet husband that I could not survive the death of my child.  He is a wise man.  He told me, "Of course you can't.  Not today.  But, should that day arrive, that is when God will give you all you need to suffer through it.  God doesn't give us all we need for our whole lives today, He gives us what we need when we need it."  Those words were like a balm to my soul.  He spoke the very words of God straight to my soul and I will never forget it or let go of it.  So, here is my encouragement to you....  if you are sitting behind your computer screen saying, "I could never survive what she has survived" or "I can't get through the days ahead," remember that God is a God who gives us just what we need when we need it therefore we don't have to worry.  
Matthew 6:34. Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. 
Our prayers also started to change around this time...they changed from "Please o Lord heal my baby" to  "Please Lord equip me to glorify you on the road you will have me travel.  Your will be done." That isn't an easy prayer when the stakes are so high, but what else can you do... you can't do it alone.  
Update Number Eleven
Thursday: Carrie and I went to the hospital to get another ultrasound done. The doctors found that Jeep has now developed ascites, which means that the dreaded fetal hydrops has arrived. Although Jeep does not have full-blown hydrops (pleural effusion, ascites, skin edema andpericardial effusion), this new development is definitely scary. Babies born with full-blown hydrops have a negligible chance of survival. The doctors sent us to UNC Women's Hospital immediately.
Friday: At UNC Women's Hospital, Carrie and Jeep endured a procedure to insert a drainage tube in Jeep's chest wall, which will allow the lymphatic fluid buildup in his pleural cavity to drain continually. (called a fetal thoracoamniotic shunt). The procedure failed.
Before I say anything else, let me say that our doctors are very skilled and the failure of this procedure is in no way their fault; we have 100% confidence in and appreciation of their knowledge, wisdom, and care for Carrie and Jeep.
A shunt is a tiny piece of sterile, inert tubing which has a "pig's tail" on each end. These two pig's tails keep the shunt from slipping in or out of the chest wall (supposedly), while still allowing the fluid to drain. Although they are very problematic (babies tend to pull them out or they get dislodged from fetal movement, and they also can get clogged and cease working), the shunt placement was our best option. The shunt in now fully inside Jeep's chest. He's so active that when the doctors were placing the shunt, he backed up against the uterine wall and did not allow any room for the doctors to place the outer part of the shunt. Since the shunt was unable to be placed, they drained some of the fluid off the lung to relieve pressure. Jeep will be spending some time in the NICU after being delivered by cesarean section and some corrective surgery of some sort will be performed. The shunt will be removed at that time. It poses no threat to his health.
Saturday, Sunday: Carrie and Jeep were monitored for heart rates, contractions, and movement. We looked at Jeep on ultrasound to see if any fluid reaccumulation had occurred (it had, but only slightly), or if the ascites had been resolved with the removal of fluid (it had not, though it had decreased). Carrie was discharged from the hospital Sunday morning since there was no major change in Jeep's condition.
The Plan For Now: We go back to monitor Jeep on Tuesday morning with ultrasound. We will most likely have this baby delivered within the week. We cannot afford to let him stay in there too long with accumulating fluid and risk him getting skin edema or pericardial effusion. His chances of survival at this point are about 65%; we do not want to decrease that any more. He is 31 weeks old (32 on Thursday), and weighs in around 4.5 lbs. We are not sure how long Jeep will be in the NICU after birth, but he will need lots of prayer through this intensely difficult time. We believe he is a very strong boy (his heart rate remained strong though the entire weekend); we pray he lives a very long and fulfilling life.

19 April 2011

Doubt setting in

Romans 8:28 "And we know that in all things God works for the good of those who love him, who have been called according to his purpose."

Nothing had gone as planned... well, nothing had gone as I had planned.  At this point in my pregnancy, I was really starting to doubt that my sweet boy would be okay.  I was starting to doubt that my faithful God would be faithful to ME.  I mean, didn't healing my baby = God's faithfulness to me?  I started to feel like if I didn't get my way God was no longer faithful.  My plan had become more important to me than His plan... His glory.  I needed to have a realignment, but my flesh cried out and I felt very alone.  But, my sweet friends, I was never alone.  God did not for one second take His eyes off me or my boy.  God was with me and when I didn't feel Him, I knew it was because I had turned MY face away from Him.  And when I did that, I lost all access to His power, His comfort, His peace, His joy, His strength.  I had to turn my face back to God to get through this. And to do that, I had to pray, look to His Word, and ask others to pray for me especially when I couldn't find the words to pray for myself.  I can't tell you how many times my friends gathered around my bulging belly, laid hands on me and prayed their hearts out for me, my family, and my little one.  It meant/means the world to me!  Now, let me say, if you don't know my King Jesus, I pray you would seek and find Him this very day because if you are walking a path similar to mine or struggling in a heart wrenching way, you can't have hope, you won't have peace, and you certainly won't have joy apart from Him.  This is an impossible journey without the one who created you and loves you.  

We started to give Jack different names through this process so we could call him something since we had not picked out a name yet... as you will soon see Turbo and Jeep were two of those names... we eventually stuck with Jeep, but bare with me until we get to that point!

Here are excerpts from updates Seven and Eight.  Gestational age was 29 weeks.
Today is Tuesday. As you know, 72 hours ago, Turbo underwent a fetal thoracentesis to remove fluid from his pleural cavity, which we now believe to be lymphatic fluid
Results from today show that approximately two-thirds of the fluid has reaccumulated already, and although this is not surprising (typically pleural effusions, when drained, reaccumulate fluid within 24 hours or so), we were hoping for much less accumulation. The good news is that the amount of amniotic fluid has decreased (increased levels of amniotic fluid can result in preterm labor, more commonly known as premature birth). We have another appointment this Friday for further analysis of the baby's situation, and we will have weekly visits to closely monitor Turbo's development. We pray that there will be no need to drain the fluid again or place a shunt in his pleural cavity.
We are told that the fluid which was drawn from Turbo's pleural cavity is likely lymphatic fluid, which leads us to hope that the cause of the fluid buildup is chylothorax. This is common enough in newborns to not cause great concern, and is the most hopeful prognosis of his condition.
No matter what the cause or result of this fluid buildup, we can be sure that his lung capacity and function upon birth will not change from what it is right now. The fetal lung ceases major development at about 25 weeks of gestation. All we can do now is pray (actually, I think that's all we ever could do, isn't it?).

The name of the day is "Jeep." Here is a haiku to explain today's ultrasound:
Growing effusion,
The child within her suffers;
Jeep is a fighter.
The fluid will likely return to its previous state before long, which will likely result in the necessity of a shunt to be inserted. The amniotic fluid is increasing as well, and though it is still only in the high normal range, we must closely monitor this as well. Jeep seems to be doing well; his heart is strong and he's a fighter. Jeep is also a little larger than average size for his age - not terribly surprising for those of you know about the huge babies in our family. Lord willing, Jeep will survive the pregnancy and delivery, and be a strong, confident little boy. We eagerly await more news from the doctors, as well as the encouragement you all have given us. Thank you so much for standing in prayer with us; our prayer (and belief) is that Jeep will have a great impact on all those who know him - after all, he already is.
Psalm 118:25-29 "You are my God, and I will give you thanks; you are my God, and I will exalt you.  Give thanks to the LORD, for he is good; his love endures forever."

11 April 2011

Change of Plans

Isaiah 41:10  "So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand."

As much as we wanted to continue with our "non invasive" strategy, truly believing that God would heal our baby and that giving our baby time was what he needed, a time had come where we could no longer sit back and do nothing.  The doctors strongly encouraged us to take action and under their guidance and lots and lots of prayer, we decided to try and help our little man with some amazing help from some amazing doctors.  And it wasn't just our prayer, but prayer from a church body who supported us every step of the way and a family that we could not have done this without.  God promises to provide all we need just when we need it (Philippians 4:19 "And my God will supply all your needs according to His riches in glory in Christ Jesus") and He did just that over and over again.  Through our obedience in prayer and seeking God... looking straight to Him, He blessed and blessed and blessed some more.  I know that sounds crazy since we all know what happened in the end.  Our little man would go to be with Jesus on the very day of his birth, but my focus can't just be on the end, it must be on the process as well.  God had something to teach me THROUGH the process not just at the end.  He had to teach me how to depend on Him in a way I never had to before.  He had to teach me how to pray (more on that later).  He had to teach me how to reach out to others.  He had to teach me how to look outside of myself and love others because this wasn't just MY journey.  He had to teach me how to focus and refocus.  He had to teach me how sometimes the plans have to change.  He had to teach and teach and teach, and He so graciously continues to do that even now.

Here is an excerpt from update 6. Gestation age was 28 weeks.
Our last appointment was Friday morning. Our doctor told us that the fluid in the baby's pleural cavity looked like it had grown, and the preliminary measurements that they took indicated that the amount of fluid had doubled in the past two weeks. In addition to that, the amniotic fluid had increased as well, which is an indication that the increased fluid and pressure in his chest had blocked his esophagus (a normal fetus continually swallows and urinates out the amniotic fluid, and increased fluid shows that he is urinating out the fluid but not swallowing it).
Based on this information, and also the poor prognosis with continued non-intervention, we were recommended to proceed with the thoracentesis. Our doctor called UNC Women's Hospital and arranged for Carrie to be admitted that same day. We went directly to the hospital and stayed there overnight. 
The thoracentesis was performed on Saturday morning by our regular doctor and one of her partners - there was a great deal of experience and knowledge in the operating room (4 physicians, 2 anesthesiologists, and 3 nurses). I was able to be there for the procedure - everything went very smoothly and they were able to remove about 75% of the fluid. The baby responded very well, and has been very active since the procedure ended. Carrie is taking it easy right now with slight cramping from the procedure (completely normal and expected); we will return to take another look at the baby on Tuesday to see whether any of the fluid has reaccumulated.
Our prayer is that the fluid will not accumulate at all, or at least not quickly, so that we do not have to intervene any more in the pregnancy. Please continue to pray for our baby through this. Thanks for all your support.

06 April 2011

Remembering the Path

Proverbs 3: 5-6 "Trust in the LORD with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your paths straight."

My husband and I prayed.  I mean, we REALLY prayed.  I want you to know that.  Each step of this process was about our relationship with our Lord.  We didn't think at any point that this was something we could handle on our own.  I tell you this because I think we sometimes find ourselves in hard circumstances and we start to think it is all about the circumstances and what we do or don't do to help get ourselves out of these circumstances.  Sometimes it isn't about getting out, but getting through.  In our conversations and in our prayers, we truly believed that the less we intervened the better.  Most doctors would have told us we were crazy, and maybe we were (well, I am sure that we are, but that is for totally different reasons!), but we never wavered from that decision.  My heart was at total peace with that.  It seemed the only right thing to do for us. I truly believe that if I were supposed to have handled it differently, then that peace would not have been there... not when I was so  deeply in prayer about these things.  That fact would proved to be something I had to remind myself of over and over again after Jack died.  We start to question all of our decisions once things start to go horribly wrong and we forget about the peace that was in the decision.  Or we start to doubt that peace.  Having our blog helped us remember.  It continues to help me remember when I start to doubt.  God is so good as to give us tools to remember who He is and what He has done.
These are excerpts from updates four and five.  Gestation age was 25/26 weeks.

Updates Four and Five 
The doctor reported to us that the significance of the fluid in our baby's chest is probably not affecting his lung development negatively, but there are signs that his heart is beginning to be affected by the pressure buildup. We are told that he has a slight tricuspid regurgitation. The doctor does not think this is a life-threatening condition in the immediate future. We have a follow-up exam next Friday, at which point she (the doctor) will most likely recommend the thoracentesis be done. We will have that procedure done at the UNC Medical Center so that, in the case that our baby does not respond well to the procedure, he can be delivered via emergency cesarean section and have a good chance of survival. His current gestational age is 25 weeks.
Our ultrasound from this morning revealed that there is no significant change in the baby's health, thus we can continue our nonintervention in the pregnancy (we do not have to get the thoracentesis at this point in time). We will return in two weeks for another exam. So, while we are still wandering in the realm of the unknown, at least we are giving the baby more time to grow and develop in the womb. I see this good news as God's provision for us through your many prayers; please continue to do so on our behalf.

24 March 2011

Slow and Steady

Psalm 55:22 "Cast your cares on the Lord and He will sustain you; he will never let the righteous fall."

The first few ultrasounds after the first one, were fairly "uneventful."  We were learning new terms like pleural effusion, hydrops, thoracentecis, and diaphramatic hernias.  I know more about a baby's development than I ever thought I would want or need to know.  It is truly a miracle of God that any of us are born whole and healthy.  I learned a lot about who God is and how much He pays attention to even the tinniest details like finger nails and eye lashes and the big details like lung capacity and diaphragm function.  We are truly amazing creatures.  I hope you know that, my friends.  You are truly fearfully and wonderfully made.  God adores even the hairs on your head.  Praise God for the masterpieces He makes everyday.
At this point in my pregnancy, I truly believed everything would turn out just fine.  I really, honestly thought that God would surely heal my baby.  I couldn't imagine that this was the road God was going to ask me to walk.  I wouldn't be a statistic and neither would my precious baby.  We would be okay... or would we... there might have been a gentle thought in the back of my head that I could be wrong... but really?  We were warned that most of the medical world would have taken more drastic measures sooner, but we prayed and talked and prayed some more and we decided to wait on the drastic measures and see what God would do.  I doubted my choices later and we will surely get to those doubts further down this journey we are taking together.  God was just getting started with me.  My prayer life became something new during these days.  You see, we can choose to turn to God or turn from God during times of crisis.  We can't choose what will happen, but we can choose who we will turn to when it does.  Will I turn to myself who has no control, or will I choose to turn to the only one who can heal me... from the inside out?  We will talk about what healing looks like too... we need a paradigm shift there, my friends.  I am certain of that.
Here are excerpts from updates 2 and 3.  I was rounding 23 weeks during this time.

Update Number Two and Three
Carrie and I went back for another ultrasound today. Thank you for all your support and prayers over the past couple weeks. The results from today's ultrasound showed that the amount of fluid in the baby's chest is about the same as it was last week. There is no visible change in volume, though we were hoping and praying for a decrease in fluid. However we were happy to hear that it did not increase, because that meant that we did not have to do the thoracentecis to drain the fluid. The baby still is at risk from the pleural effusion (which is unilateral), but his chances of survival are much greater than if it were bilateral or if he started to develop hydrops (fluid in multiple cavities of the body).
The doctor told us that, while there is no research for our specific situation, studies on fetal diaphramatic hernias where the intestines are pushed into the chest cavity say that when an intestine to lung size ratio (fluid to lung size ratio in our case) of 1.4 or greater is present, there is minimal risk to the development of the lung. Based on measurements taken this morning, our baby's fluid to lung size ratio is 2.04.
We are also told that there is no sign of Hydrops (praise God!). We will have weekly ultrasounds from now on to watch out for this. Starting two weeks from now, we will be seen at the Chapel Hill UNC Women's Health Center, because if a thoracentesis is performed and the baby does not respond well, his chance of survival is greater with the level of care provided there.

18 March 2011

The Call

Ecclesiastes 11:5 "As you do not know the path of the wind, or how the body is formed in a mother’s womb, so you cannot understand the work of God, the Maker of all things."

You know how there are some things that happen in life and you will never forget where you were or what you were doing when you found out? Like when 911 happened, I remember exactly where I was when I heard the news. I'll never forget. Well, this was one of those moments. The phone call I got after my first ultrasound at 18 weeks. The nurse informed me that an abnormality was found... fluid on the heart and I needed to come in for another ultrasound as soon as possible. It was a Friday and I was leaving for Florida for a family vacation for 10 days... could it wait? They said it could and I was free to go. I figured that meant it wasn't so bad... I mean, fluid on the heart seemed like a physical problem they could fix. I refused to look it up online or ask anyone about what it could be for those 10 days (anyone who knows me, is not surprised!). It turned out to be fluid on the lung and not the heart, but it wasn't until I was sitting in the genetic counselors office talking about trisomys and amniocentesis and termination of pregnancy and all sorts of major complications did I even realize that this was more than a simple physical problem. I didn't even understand what I was doing in a genetic counselor's office at all... I mean who was this lady and why did she want me to talk about "termination of pregnancy?" Really? Nothing made sense to me. I was blind sided to tell the truth. This sounded really serious all of a sudden. So, when I don't know what is happening, I always go back to what I do know. God is good. God loves me. God is in control. God knows and loves this baby. God has a plan and it is better than mine.

Here is part of our first update.

Our baby boy (100% positive on that now) has a pleural effusion in the left side of his chest which is pressing against his left lung and pushing it and the heart to the right. The fluid buildup is not allowing the lung to develop normally, but praise God there is nothing wrong with his heart. There is also a slight buildup of fluid at the nape of his neck, which is a marker for Downs Syndrome. There is a very slight chance that the cause is a chromosomal abnormality other than Downs (trisomy 13 and trisomy 18 are the ones we discussed); they are highly lethal, and the baby would likely not survive long if that were the case. We spoke with a genetic counselor who said that the likelihood of a trisomy 21 chromosomal abnormality (Downs) being the cause of the effusion is between 2 and 5%. The other possible known cause is an infection. We were given the option of performing an amniocentesis, but there is a 0.5% risk of miscarriage with the procedure, and it can be done at any point during the pregnancy, so we declined. If the fluid in his chest does not decrease by next week, the doctor will go in and drain the fluid, and that fluid will be used to check for chromosomal abnormalities and infections. If the fluid does not replenish itself (which is preferable), the lung will be able to develop normally, otherwise they may need to put in a shunt. Whether or not a cause for the effusion is found, we will need to monitor our son throughout the pregnancy, and if there is no cause found, the doctor is confident that the situation will resolve itself after he is born.

Please pray for our baby and his mother as we all go through this together.

The biggest decision we had to make that day was the amniocentesis.  You see, if I had done it that day as they suggested,  I would get the results before 21 weeks... leaving "termination of pregnancy" as an option.  They didn't "advise" a "termination of pregnancy," but they wanted us to have "options."  Didn't they know who my Lord was?  Wasn't God still on His throne?  He was not surprised at my circumstances and He had not made a mistake in giving us this child (Colossians 1: 16-17or in him all things were created: things in heaven and on earth, visible and invisible, whether thrones or powers or rulers or authorities; all things have been created through him and for him.  He is before all things, and in him all things hold together). God was going to have to take this child if that is what was in His plan... I wasn't giving up!

16 March 2011

Welcome


Romans 8:38 "For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither heights nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord."

I can not begin to tell you how excited I am to begin this journey with you here. I have been praying for you and will commit to continue to pray for you as we walk through some hard times together. I want you to know and believe in the depths of your heart that you are so loved by the one true God, and no matter what happens, that will not change because He has not changed. I have walked through some fire, my friends, and yet I know that I am loved and I am not alone... not ever... even when I think that is exactly what I want. I have started this blog to share with you how I have come to know that truth. You see, I found myself at a crossroads 4 years ago today - a place where I had to decide if I really, truly, in my heart of hearts believed that God is who he says he is, because he says he is good, holy, righteous, all-knowing, all-powerful, and in total control, and I had just had to watch my son's heartbeat dwindle down to zero. I had to watch as nurses unplugged my son's body from the so-called "life saving" machines and give his lifeless body to me. My spirit and my soul felt empty and afraid... grieved, confused, my body longing to nurse my son, to provide sustenance to my baby. Yet he grew cold fast, he was gone, and I would never be the same again.

So, here I am... changed. And yet, still changing. Isn't God so amazing that He would not see fit to leave us alone and unchanged? He wants us to draw into a deeper and deeper relationship with Him... so He pursues us and nudges us and sometimes just plain ole kicks us into change. For His glory and, my friends, for YOUR GOOD! It's a promise that we can take a hold of and know it is true.

So, here's the deal: when I was pregnant, my amazing and totally gorgeous husband wrote a blog to update our friends and family with any new news from our numerous doctors appointments. I am going to re-share those with you here with some input from me on where I was and what was going on in my brain and heart. Then, because the Lord was so kind to me, He gave me a desire to journal (total act of God) the things He showed me through His word starting about 4 weeks after I had lost Jack Michael. I am going to share that with you too. I pray He will speak through me to the very core of your heart and that you will find comfort and love that comes only from Him. So, here is where we will cast off the silence that comes with the loss of a child. We are going to talk about what we feel we can't talk about to anyone. This is an open door for you to share and to grieve and to rejoice. Maybe you haven't lost a child, but I am betting that you have suffered in some way. I pray you find comfort here too.

So, please, come with me down this very intimate and deep journey... feel free to invite others!